It is important to be informed about your injury and your care. Online resources can be a helpful tool alongside your own personalised care recommendations from your treating team and the SCI Network. These should not replace professional advice; please speak to a healthcare professional if there is anything that you are concerned about.
The National Rehabilitation Centre have a made a series of videos as well as patient information leaflets to help people with SCI understand their injury. The vidoes and leaflets are bitesize so only 15 minutes each, and can be found here.
They also have a patient education video about neurogenic bowel care which can be found here
Salisbury Spinal Cord Injury Centre; information sheets collated by the specialist teams working at the Spinal Cord Injury Centre in Salisbury.
Spinal Injuries Association Knowledge Hub; information and downloadable factsheets on a range of topics related to body, mind, and life with spinal cord injury.
SCI Health Maintenance Tool; a comprehensive website and app developed by SCI specialist services in Australia, providing information and advice about all aspects of living with spinal cord injury, to empower you to take the best possible care of your own physical and mental health.
Model Systems Knowledge Translation Centre; a series of factsheets and resources developed by SCI specialist services in the USA, including important topics such as autonomic dysreflexia, bladder and bowel management, and skin care and pressure sores.
The CaudaEquina App, developed by Champions Charity, is a digital tool designed to support people living with Cauda Equina Syndrome (CES). It acts as a central hub for education, personal health management, and communication with healthcare providers.
See link below for how to download and use the app
National Spinal Injuries Centre on HealthZone UK app; developed by the team at the National Spinal Injuries Centre in Stoke Mandeville Hospital, this app hosts information and patient education resources. Click one of the links below to download the HealthZone UK app then search for “Stoke Mandeville NSICs” to access the resources.
